How Do You Measure Respect?
Respectful end-of-life care is concordant with patients’ stated goals, values, and preferences —in other words, honoring what matters most to them at the end of life. The failure to respect patients’ wishes regarding end-of-life care can lead to harm — including emotional, psychological, socio-behavioral, and financial harm — meaning that poor end-of-life care is a safety issue. Assessing whether end-of-life care has been respectful is challenging, but critical.
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