ImproveCareNow: Involving Patients in Research on Inflammatory Bowel Disease
CINCINNATI, OH—Jennie David was diagnosed with Crohn’s disease, just after her 12th birthday. None of the usual treatments worked for her. By the time she was 19, her condition was so severe that doctors said her entire large intestine needed to be removed.
Her surgeon assumed that a young woman would not want an ostomy, in which an abdominal opening is created that allows feces to empty into an external bag. Instead, he offered her an internal procedure that allows people to use the toilet normally but more frequently than before, and it sometimes can lead to permanent diarrhea and incontinence.
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